Sep 29, 2021
In this episode, we are joined by Nikita Aashi Chadha, Writer & Lead Facilitator for Cysters, Dr Cara E. Jones, Assistant Professor of Women's & Gender Studies at California State University at Sacramento, and Beth McCowen, Deputy director of Endo Support United. Together we discuss how various aspects of our identity (i.e. race, gender, sexuality, age) may further contribute to the delay in receiving a diagnosis, and the quality of care one receives along their endometriosis journey.
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This podcast was generously brought to you by the Nuffield Department of Women’s and Reproductive Health, at the University of Oxford.
We would like to thank Nikita Aaashi Chada, Cara E. Jones and Beth McCowen for sharing their experiences of endometriosis with us, but also for shedding light on the crucial importance of understanding endometriosis and communicating about it in an inclusive and intersectional manner.
Contact Details:
Nikita Aashi Chadha:
(instagram): @nikkaayyy_c
Dr Cara E. Jones: (twitter): @DrCaraEJones,
(email): cara.jones@csus.edu
Beth McCowen: (twitter)
@EndoSpprtUnited, (instagram): @bethmccoweb,
@endo.support.united.lt
Additional Resources:
To get in touch with, or to work directly with Cysters please contact us via smile@cysters.org
We are currently working on changing the narrative of the chronically ill space by publishing our own powerlist of 100 POC Chronic Illness Advocates. We are urging people to self-nominate in an attempt to dispel imposter syndrome: http://cysters.org/thepowerlist/
If you'd like to participate in research that is looking at intersectional experiences of Endometriosis, please visit the link via Jodie Hughes PhD @ Endometriosis South Coast: https://roehamptonuniversity.onlinesurveys.ac.uk/a-study-on-the-effects-of-location-ethnicity-and-care-app
To read more about Endometriosis and Intersectionality, please refer to Nikita's Discover Society Article, or follow us on Instagram: @nikkaayyy_c @cystersgroup @neelamheeraspeaks
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Cara E. Jones articles:
Queering gendered disabilities
The Pain of Endo Existence: Toward a Feminist Disability Studies
Reading of Endometriosis
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Endo Support
United Ltd resources
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If you're interested in donating to the work done my Endo Support
United Ltd and Cysters, please consider getting in
touch: Endo Support
United Ltd, Cysters.